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Sugar, Spice, and Some Self Care Advice

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Self care is incredibly hard to put into practice, but it is an essential key to a healthy life. More often than not, those of us who are chronically ill spend more time in the caregiver role because it provides us with a sense of purpose, a sense that many of us struggle to feel because of the changes chronic illness has brought into our lives. While it is nice to take care of others and be there for them, we cannot forget to be there for ourselves and nurture our own bodies. I tend to struggle with this greatly; as a matter of fact, I don't really practice self care at all (or as much as I should). That being said, self care isn't always bubble baths, lit candles, and expensive face masks. Sure, it can be that. But it is also taking your medication, slowing down when your body needs it, getting the right amount of sleep, eating healthy, etc... For myself, I don't always have the energy to run a hot bath and lay there. Sometimes it can cause complications with my own ill
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Fighting Internal Ableism

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In one way or another, we've all succumbed to that nasty little voice in the back of our head. I call that voice "internal ableism" and let me tell you, we are quite acquainted. I have been sick for most of my life, however it is only within the last year and a half that my symptoms have rapidly worsened. During grade school, I played basketball and volleyball every year, I competed in our local track meet, and skated every weekend. I was quite the active kid and I never imagined a time in my life where I wouldn't be able to partake in these activities. Shortly after my 17th birthday, I was laying in a hospital bed covered in a rash that we assumed was from an allergic reaction to something earlier that day, and an IV of fluids in my arm. I vividly remember saying to myself: " I could never live like this ", and little did I know that a year later, I'd be living that exact life. Personally, I struggle with internal ableism. I catch myself pushing my bo
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